My Dad sometimes comes by the house on his day off. Today we split a pastrami sandwich- Tyler was at work and Nora was tired. We are upping one of Nora’s medications this week…
-
-
Nora had one seizure cluster today. We refer to her seizures as “clusters” as they involve several 1-second to 60-second seizures over a 10 to 20 minute span. These seizures leave Nora drained,…
-
It was 3am. Tyler was sleeping next to me on the padded windowsill of our ICU room at Children’s hospital. The last few hours were blurry.…