“I felt it shelter to speak to you.”
– Emily Dickinson
Soap suds erupt in the sink as Tyler rinses a pile of dishes. He begins the process of cleaning a frying pan but pauses to ask how I’m feeling about a reality I’ve been avoiding: Nora’s hospital admission — a fast- approaching, five-day, inpatient stay to adjust her epilepsy medications.
I distract myself from answering by folding dishtowels, wishing I could articulate to him, and to the world, that when it comes to intractable epilepsy, my voice in all its forms — writing, prayer conversation, even conversation with my husband — is fading, raspy, raw, and in some ways, unrecognizable.
I tell him what I’ve explained before, “It’s hard to be hopeful.” He clenches his jaw and stares down at the floor. I make a halfhearted attempt to explain away the emotion in the room by logically and rationally listing “the whys,” of my hopelessness, but suddenly, he’s moving towards me and I am quickly and acutely aware of the space evolving between us: a shelter from any words at all.
For a moment, we draw close and together let it be okay to feel not hopeful.
Eventually, he makes me a drink with ice, but I don’t drink it. Instead, I hold it against my cheek and rest my elbows against the kitchen counter before I say the only thing that needs to be said, and what we’ve told each other all along: “I couldn’t do this without you.” And today as I write this, I see the miracle, or perhaps the paradox as this: even as hope is fading, we bloom together here and now.
Photo (2018): Jessica Rice Photography
11 Comments
I just read this out loud to Uncle Ernie and -even though I’d read it twice -I cried. You are both all the beautiful things about love, hope, fear, healing, and joy. I have hope. I know you do, too. Joy and promises of sunny days, more and more, coming at you. We love you.
We love you both so much. Thank you for hoping with me, and pointing my eyes to sunny days and joy to come 😘♥️
🤍🤍🤍
❤️🙏
Hope was found in the touch of your husband and a cold drink and the reminder that you aren’t alone. Love you so much.
Amen sister, thank you. Love you back ♥️
Prayers❤️
Love and prayers to you and your family. You and Tyler have a neverending love, not only for each other, but for the Lord. Trust in our Lord, and He will always be with you. ❤
Joanie just said exactly what I am feeling for you and your whole family:)
“Being deeply loved by someone gives you strength, while loving someone deeply gives you courage.” ― Lao Tzu
Sometimes, for me, hope is but a yearning, abstract and anxious. Maybe love, quietly blooming it’s strength and courage to face another challenge; another day, just doesn’t call for anything else.
Sending love & light
Xo
Beautiful words. Thank you Kristen ♥️