Dear Welly First Aide, I’m a blogger who writes about my family’s day- to- day life with medical complexities. I recently wrote a post titled “The Botched Blood Draw Part One” that led me…
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To the woman who did two U turns to pull over and ask me, “Are you okay?” when you saw me sobbing, doubled over, hands on my knees, staring at my red running shoes…
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I follow the respiratory therapist to the door of my 4-year-old daughter’s hospital room. The therapist stops at the door, near the waist-high grey trash can, and tugs at the paper yellow gown that…
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It’s 5:00 PM, I open the duel panels to the refrigerator, glancing at one side and then the other. I crouch down to the lowest shelf and see what I’m looking for– a long…
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Written By: Maggie Montague (Aunt Maggie) I swore I would never be one of those people whose voice skyrockets in the presence of babies, bouncing between cheerful highs, soft coos, and inane giggles. And,…
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I walk through the open sliding glass doors – leaving Children’s Hospital. Tyler moves ahead of me with all of the gear we need to make it through a lengthy post-hospitalization pulmonary appointment: our…
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About a year ago, I was rushing through the church doors to Amazing Grace School of Performing Arts performance of The Lion King. Tyler was parking the car with 4-month- old Everett, 2 ½…
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A few weeks ago our friend, Jacob Montague (Uncle Jacob), text us a picture of the interworking’s of a old-fashioned music box with a microphone rigged to it.…
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My dear Cambridge Community, When I received Deborah’s text about a gift for Nora (that HAD to be delivered before December 1st) I must admit I was quite curious! Curiosity evolved into eager anticipation…
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It was Friday and Tyler was sad. You have to know him well to see the sad. He doesn’t speak it (unless you pry of course). He wears it. Usually on his shoulders and…
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My dear family, friends and prayer warriors, As you might recall, Nora started a 7-week steroid treatment a little over two weeks ago. We were informed that we would most likely know if this…
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Tyler and I have received Facebook messages, phone calls, Instagram posts, and text messages from friends and family this week telling us they are praying for baby Nora. One friend sets an alarm during…