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Noraeverafter

  • Modern Motherhood

    “Wait and See” (Part Two)

    May 14, 2025 Read More
  • Modern Motherhood

    “Wait and See” (Part One)

    April 22, 2025 Read More
  • Modern Motherhood

    Anger Room

    June 11, 2024 Read More
  • Modern Motherhood

    The Wheel Goes Round and Round

    February 25, 2024 Read More
  • Modern Motherhood

    Removal and Refurbishment 

    May 7, 2023 Read More
  • Brands We Love Grace & Nora's World

    Children’s Book Announcement: “Grace and Nora’s Dance Among the Stars”

    December 14, 2022 Read More
  • Modern Motherhood

    An Ambulance Ride, Ice Bath, and a Word on Joy.

    November 30, 2022 Read More
  • Modern Motherhood

    “She Is The Worst Birth Control”: A Baby Book

    November 8, 2022 Read More
  • Modern Motherhood

    If Only I Could Roller Skate

    May 6, 2022 Read More
  • Modern Motherhood

    Patient Plants, Pristine Spaces, and Bones

    February 11, 2022 Read More
  • Stories of Kindness

    A Note to The Group of Students Who Discovered All the Ways Nora Can Play

    A Note to Nora’s Recess Buddies: I am told by Nora’s nurses, and Mrs. Jackson, that at the start of the school year, a small group of students met with Nora, during recess, to…

    December 19, 2019
  • Modern Motherhood

    The Prognosis

    “What is your favorite discovery?’ asked the boy. ‘That I am enough as I am,’ said The Horse” — Charlie Mackesy This essay captures a conversation I had with a psychiatrist the month I…

    November 26, 2019
  • Modern Motherhood Stories of Kindness

    Something Needs to be Said

    July 2019 I reach for a hospital pillow and today’s newspaper: I stare at the headline and recall Nora’s nurse’s reaction from this morning when I read it to her: UCSD GETTING ANOTHER $100M…

    October 30, 2019
  • Modern Motherhood Stories of Kindness

    A Note to My Daughter’s ER Nurse, Who Asked Me: “How Would You Like Me To Address You?”

    First you should know, your question left me momentarily stunned. And then, it suddenly made me quite suspicious. Because a nurse (or any medical personnel or professional) asking about a patient’s mother’s name— in…

    September 19, 2019
  • Modern Motherhood

    The Botched Blood Draw Part Three

    When all the world is a hopeless jumble and the raindrops tumble all around. Heaven opens a magic lane. When all the clouds darken up the skyway, there’s a rainbow highway to be found,…

    September 5, 2019
  • Stories of Kindness

    Christmas In July

    “I will honor Christmas in my heart, and try to keep it all the year.” – Charles Dickens, A Christmas Carol My Dear Friends, It’s no secret I love Christmas. I listen to Christmas…

    July 30, 2019
  • Modern Motherhood

    “She’s Not Breathing!”

    I stare at the sand, inches away from my face and examine bits and pieces of grain sized rocks, seashells and sea glass. I take a deep breath and watch as I let it…

    July 2, 2019
  • Modern Motherhood

    Why I Run

    “Too many women around the world do not have access to essential maternity care, and more than 800 women a day die from complications related to pregnancy or childbirth. Almost all global maternal deaths are preventable.” –…

    June 3, 2019
  • Stories of Kindness

    A Note to The Security Guard Who Gave a Peace Sign to The Woman Lacing Up Her Roller Skates

    A note to the security guard who gave a peace sign to the woman lacing up her pink roller skates on the fourth level of the medical “EMPLOYEES ONLY” parking garage: First of all,…

    May 22, 2019
  • Modern Motherhood Stories of Kindness

    The Botched Blood Draw Part Two

    Dear Welly First Aide, I’m a blogger who writes about my family’s day- to- day life with medical complexities. I recently wrote a post titled “The Botched Blood Draw Part One” that led me…

    May 17, 2019
  • Modern Motherhood

    The Botched Blood Draw Part One

    “Go run out the stress from that blood draw,” Maggie says to me from the couch as I adjust my ponytail, position an ear bud snuggly in one ear and step out the back…

    May 15, 2019
  • Modern Motherhood

    The Story of the 29-Year-Old Mom on Pink Roller Skates

    “I will make everything around me beautiful – that will be my life.” -Elsie de Wolfe My Nora is asleep. Finally, after six days of treatment in this hospital bed – IV antibiotics, oxygen…

    April 17, 2019
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About Me

About Me

Hi! My name is Jesse, and I enjoy filling this space with stories about my motherhood and my family's day-to-day life with Aicardi syndrome. Thanks for stopping by. More

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