My Dad sometimes comes by the house on his day off. Today we split a pastrami sandwich- Tyler was at work and Nora was tired. We are upping one of Nora’s medications this week…
-
-
It was Friday and Tyler was sad. You have to know him well to see the sad. He doesn’t speak it (unless you pry of course). He wears it. Usually on his shoulders and…
-
My dear family, friends and prayer warriors, As you might recall, Nora started a 7-week steroid treatment a little over two weeks ago. We were informed that we would most likely know if this…
-
Tyler and I have received Facebook messages, phone calls, Instagram posts, and text messages from friends and family this week telling us they are praying for baby Nora. One friend sets an alarm during…
-
Nora had one seizure cluster today. We refer to her seizures as “clusters” as they involve several 1-second to 60-second seizures over a 10 to 20 minute span. These seizures leave Nora drained,…
-
I was picking through a carousel of t-shirts at Nordstrom Rack. They were perfect, soft, moderately funky (like the trendy funky) and inexpensive. Why were they so cheap? Why wasn’t I having to fight…
-
Eva and Monty are like my second parents. Their family is our family. We celebrate holidays together and birthdays. We pray for one another and support each other. Eva and Monty are grandparents to…
-
It was 3am. Tyler was sleeping next to me on the padded windowsill of our ICU room at Children’s hospital. The last few hours were blurry.…